Norah’s CREWsaders charity event to find the cure for Alternating Hemiplegia of Childhood this Saturday

SALEM – One child in every one million children suffers from Alternating Hemiplegia of Childhood (AHC), a is a rare neurodevelopmental disorder characterized by repeated episodes of weakness or paralysis that may affect one side of the body or the other (hemiplegia) or both sides of the body at once (quadriplegia).

Norah with her teddy bear

Locally, Norah was diagnosed in September of 2021, and since her diagnosis, the community has rallied together to help support the family in their time of need. This Saturday, June 25th at 10:00 a.m. will allow the community to come together again, to support the fight against AHC and others dealing with the disorder.

On Saturday, the family will be hosting a charity 5k walk/run, and auction, with live music, food, and fun to raise money to work to find a cure for Norah. Please be sure to wear your red, white, and blue to support Norah and CureAHC. All proceeds will benefit CureAHC ASO project funding to work to find a cure for Norah and others like her.

For more info on AHC you can visit or Norah’s CREWsaders Facebook page to learn more about where and how you can help.