Charity event to be held for girl with a one-in-a-million disease diagnosis

CAMPBELLSBURG— In 2021, just after her second birthday, Norah Kate Richards was diagnosed with Alternating Hemiplegia of Childhood (AHC). According to the National Institutes of Health, this rare disease is characterized by recurrent attacks of loss of muscular tone, resulting in hypomobility on one side of the body. There are less than 300 cases in the United States.

Norah, now four years old, is the youngest of four and loves makeup, princesses, and dresses. She has a great sense of humor and loves to laugh.

Her condition causes unimaginable symptoms and is like having epilepsy, stroke, Parkinson’s, cerebral palsy, Alzheimer’s, autism, and ADD/ADHD. Currently, there is no cure for AHC. Symptoms can be treated, but the disease will persist. Norah takes several medications to help her manage, some of which are very hard to obtain. Since the disease is so rare, efforts to find a cure for the disease are limited.

Her family and community, who call themselves Norah’s CREWsaders, will hold a charity event on June 8th at West Washington High School, 8028 W Batt Road in Campbellsburg, Indiana.

A 5K run will kick off at 9 a.m., with live music at 10 a.m. and an auction at 1 p.m. The proceeds will go to Norah’s medical fund and the AHC Foundation.

There will also be a Prayers and Pizza event on May 22nd.